What is Cystic Fibrosis?
In the lungs, mucus clogs the airways and traps germs, like bacteria, leading to infections, inflammation, extensive lung damage, and respiratory failure.
In the pancreas, the buildup of mucus prevents the release of digestive enzymes that help the body absorb food and key nutrients, resulting in malnutrition and poor growth. In addition, many people with CF develop diabetes because the thick mucus scars the pancreas hindering the production of insulin and causes high blood sugar.
In the liver, the thick mucus can block the bile duct, causing liver disease.
In men, CF can affect their ability to have children.
Currently there is no cure.
What is
Cystic Fibrosis?
In the lungs, mucus clogs the airways and traps germs, like bacteria, leading to infections, inflammation, extensive lung damage, and respiratory failure.
In the pancreas, the buildup of mucus prevents the release of digestive enzymes that help the body absorb food and key nutrients, resulting in malnutrition and poor growth. In addition, many people with CF develop diabetes because the thick mucus scars the pancreas hindering the production of insulin and causes high blood sugar.
In the liver, the thick mucus can block the bile duct, causing liver disease.
In men, CF can affect their ability to have children.
Currently there is no cure.
We are a group of passionate, dedicated volunteers, community and business leaders dedicated to curing cystic fibrosis.
In 2010, 15 day old Delaney Binker was diagnosed with cystic fibrosis. Friends and family immediately came together and began raising money to support the research being funded by the Cystic Fibrosis Foundation. This group became
Cure Cystic Fibrosis Miami.
We will not stop until a cure is found... until the day when Delaney and all those with
cystic fibrosis can say "I used to have cystic fibrosis".
Bonnee Binker, Co-Founder
Jerry Socherman, Co-Founder
Brian Binker
Joseph Epstein
Jason Killings
Cheryl Kushner
Courtney Larkin
Jeremy Larkin
Pablo Lopez
Jose Pinera
Roy Sonenshein
Ruben Vega
Fred Zoller
Gale Zoller
Brany Binker
Emilio Espino
Belinda Forman
Gloria Hagen
Kristen Kamala
Richard Sanders
Madelyn Valle
William Walker
Natasha Wylie
A majority of our referrals have come through Compass, the CF Foundation’s Patient Assistance department. Compass reaches out to Cure CF Miami and connects us with families in need.
In 2024, we received more assistance requests than ever before. Hurricanes Debby, Helene and Milton wreaked havoc on the southeastern U.S. and people had all kinds of challenges and needs.
Cure CF Miami has been able to help families with food, shelter, gas, mold remediation and even an air conditioner.
Thousands of our fundraising dollars have gone to direct assistance for families with a loved one living with cystic fibrosis.
This personal, immediate and essential impact was made possible by the support of our donors.
We are a group of passionate, dedicated volunteers, community and business leaders dedicated to curing cystic fibrosis.
In 2010, 15 day old Delaney Binker was diagnosed with cystic fibrosis. Friends and family immediately came together and began raising money to support the research being funded by the Cystic Fibrosis Foundation. This group became Cure Cystic Fibrosis Miami.
We will not stop until a cure is found... until the day when Delaney and all those with cystic fibrosis can say "I used to have cystic fibrosis".
BOARD OF DIRECTORS
Bonnee Binker, Co-Founder
Jerry Socherman, Co-Founder
Brian Binker
Joseph Epstein
Jason Killings
Cheryl Kushner
Courtney Larkin
Jeremy Larkin
Pablo Lopez
Jose Pinera
Roy Sonenshein
Ruben Vega
Fred Zoller
Gale Zoller
EVENT COMMITTEE
Brany Binker
Emilio Espino
Belinda Forman
Gloria Hagen
Kristen Kamala
Richard Sanders
Madelyn Valle
William Walker
Natasha Wylie
Cure CF Miami’s CF Community Care program focus is to assist families that have a loved one with Cystic Fibrosis in Florida and throughout the United States that are experiencing food insecurities and other challenges as a result of their inability to afford needed medication and basic food staples due to natural disasters.
A majority of our referrals have come through Compass, the CF Foundation’s Patient Assistance department. Compass reaches out to Cure CF Miami and connects us with families in need.
In 2024, we received more assistance requests than ever before. Hurricanes Debby, Helene and Milton wreaked havoc on the southeastern U.S. and people had all kinds of challenges and needs.
Cure CF Miami has been able to help families with food, shelter, gas, mold remediation and even an air conditioner.
Thousands of our fundraising dollars have gone to direct assistance for families with a loved one living with cystic fibrosis.
This personal, immediate and essential impact was made possible by the support of our donors.